He's looking okay, basically the same. Still improving just a little bit at a time, but not too much new to report. He's responding better to commands then before, faster response and stronger on the left. He's moving so much with his right hand that the continuout movement is causing some chafing on his legs where his arm is rubbing so he has to wear what looks like a boxing glove and a thick sleeve to keep him from making it worse.
As I mentioned beore, he is not sedated anymore, but his brain is injured, so while he is concious, he is not awake. I don't really know how to explain it, becuase I don't fully understand it. He's aware on some level as he can respond to commands and stimulous. But, his brain needs more time to recover, it's just not ready to be awake. Sorry, I don't understand it better then that.
I had a chance to talk with a rehab doctor today. It sound like they are going to start sending some rehab people to work with him tomorrow. Just very basic, moving his joints and range of montion. It's a start. The doctor told me there are two paths re can take from here. If he imporves fast, has enough endurance, and can remember things he learned the day before then he can move to the 4th floor here and have intense therapy - 3 hours a day - 1 hour each of physicial, occupational, and speech - depending of course on what his needs are. This would last about 3 to 4 weeks and then he would hopefully come home. If he isn't ready for this, they he will be transfered to a rehab facilty where he will still get therapy, but not as intense, one hour a day or every other day. They can't make this decsion until he is more awake and they can see what level of therapy he can tolerate.
One of the main reasons he is still in ICU has to do with his breahting. He is still producing large amounts of secretions and has to be suctioned regularly. Until he can clear his airway himself and keep his oxygen saturation high enough he needs to stay in the ICU.
I had a much needed break today thanks to Chris and Lindsey and Kiea took the day off and took care of me and the house. It's really hard to leave here, leaving Liam. I just want to crawl in to bed with him and hold him and make it all better. But I can't, i can't fix it, and that is just so hard to accept. I miss him alot. I mean he's here physically which I am so thankful for, but I miss him. I miss his attitiude, I miss his jokes, I miss talking with him. He's my best friend, and eveything feels empty and wierd. Plus, I let my parents take the dogs which make life easier on me, but the house feels empty. I think what scares me the most is not knowing if he will be Liam when he wakes up, or if his personality will have changed.
Friday, February 27, 2009
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I am glad to hear that Liam is improving. This is Kieas' Mom. It sounds like he is headed in the right direction. I know it is hard to be patient but it sounds as if his improvement is and will be like baby steps.
ReplyDeleteIf you step back, realize this, and do not expect more then this then you will be more at peace with yourself. Then when and if he has a tremendous step forward you can celebrate.
I will say a prayer for him before I go to bed. I am sure he feels your presence and all the love that is around him.
Do your part and take care of yourself. You do not need to feel guilty going home and taking a rest and doing some things for yourself. I am sure he would want you to do this.
Erika,
ReplyDeletePlease look after yourself. Thanks so much for blog and calls. I missed your blog last night because I was stuck on the wrong side of the fence looking at Joel's.
In one way, I'm glad for Liam that he's still asleep. He's probably more at peace than the rest of us. He will be awfully scared and angry when he does wake up but I have to believe his humor, decency and love will come back quickly.
Linda is having a really rough time right now but I'll be over in next few days. I would like to talk to him on speaker phone please.
Much love,
Frank
Erika, please call me when you get back to the hospital. I don't know if you're awake.
ReplyDeleteThanks!
Frank